Our own history
When our daughter, Georgina, was born in March 2005 she was the only child in Northern Ireland with the medical condition Hyperinsulinism (HI) As there are now approximately four families in NI with children with the condition, , we feel led to set-up a NI Support Group.
You can contact me here: Christine Bailey
The Aims of the NI Hyperinsulinism Group (NIHIG)
We have forwarded our contact details to the Consultant Endocrinologist at RBHSC a Dr D.Carson for those who come under his remit, with a child with Hyperinsulinism. There is no membership fee or any financial commitment to members. It is great to be starting a group in NI. A few years ago, HI parents were very few and far between, but since Georgina was born in 2005 we now know of another four families, so at least five children in Northern Ireland now have this condition. The children all have their condition controlled by various treatments, either medical (medication) or surgical (undergoing surgery).
The power of the internet is changing the ease of making contact with others. We trust by setting-up this Northern Ireland Support Group we will be able to achieve our aim to assist and support others.
The UK Support Group www.hi-fund.org
There is also a great worldwide discussion/support group on Yahoo.
Thanks
Christine & William Bailey
You can contact me here: Christine Bailey
The Aims of the NI Hyperinsulinism Group (NIHIG)
- To help raise awareness of the medical condition of Hyperinsulinism and how it affects families/carers and children alike.
- Various information leaflets are distributed about HI.
- Fundraising.
- To continue with our various fundraising activities and feel that being a "local" group will help with this. We forward all monies received to GOSH (Hyperinsulinism Fund Ref: SH16)
- Advice/Support
- This is our main aim. We will be a local point of contact for families wanting advice, support or just a chat about HI with another parent/carer who knows what they are going through.
We have forwarded our contact details to the Consultant Endocrinologist at RBHSC a Dr D.Carson for those who come under his remit, with a child with Hyperinsulinism. There is no membership fee or any financial commitment to members. It is great to be starting a group in NI. A few years ago, HI parents were very few and far between, but since Georgina was born in 2005 we now know of another four families, so at least five children in Northern Ireland now have this condition. The children all have their condition controlled by various treatments, either medical (medication) or surgical (undergoing surgery).
The power of the internet is changing the ease of making contact with others. We trust by setting-up this Northern Ireland Support Group we will be able to achieve our aim to assist and support others.
The UK Support Group www.hi-fund.org
There is also a great worldwide discussion/support group on Yahoo.
Thanks
Christine & William Bailey