UK Support Group
Background of the UK Hyperinsulinism Support Group
The Children's Hyperinsulinism Fund was started up by Dr Khalid Hussain, Nurse Nicky Mumford, parents Adrienne Burton and Julia Killengray in 2003 with Nurses Ginnette Flinn and Clare Gilbert joining soon after. The Children's Hyperinsulinism Fund helps children in the UK and around the world who suffer from Congenital Hyperinsulinism. It is striving to find lifelong answers to the problems that these children face daily. The Children's Hyperinsulinism Fund is a Fund within the Special Trustees Charity of Great Ormond Street Hospital for Children. The Fund's aim is to raise funds for research into Congenital Hyperinsulinism (CHI), also known as Persistent Hyperinsulinaemic Hypoglycaemia of Infancy (PHHI).
If you would like to speak to other parents for helpful hints, just to chat or anything else contract the UK Support Group:
Julia Killengray: 01376 528569
Adrienne Burton: 020 8249 3887
There is an international email group with it’s own website designed by parents of HI children. Medical experts of HI have also written articles for this website.
www.sur1.org
To join the email group just visit the above website and follow on screen instructions. Members come from all over the world including, UK, USA, Canada, Australia and other European countries.
Quote from a parent:
“The email group is my lifesaver. I share my experiences and listen to others. I have learned a lot and been helped a great deal by others who have been there and done it! I now get enormous satisfaction helping new members through their hard times as I have now been there and done it myself”
In 2003, a doctor, nurse and two mothers established The Children’s Hyperinsulinism Fund – a charity to help children who suffer from this condition.
The fund will be used for desperately needed research into all aspects of HI from medication, cause including genetics, feeding issues, digestive enzymes and their control, diagnosis and protocol along with many other areas.
All members of the UK Support Group have an input as to what type of research is undertaken.
The Children's Hyperinsulinism Fund was started up by Dr Khalid Hussain, Nurse Nicky Mumford, parents Adrienne Burton and Julia Killengray in 2003 with Nurses Ginnette Flinn and Clare Gilbert joining soon after. The Children's Hyperinsulinism Fund helps children in the UK and around the world who suffer from Congenital Hyperinsulinism. It is striving to find lifelong answers to the problems that these children face daily. The Children's Hyperinsulinism Fund is a Fund within the Special Trustees Charity of Great Ormond Street Hospital for Children. The Fund's aim is to raise funds for research into Congenital Hyperinsulinism (CHI), also known as Persistent Hyperinsulinaemic Hypoglycaemia of Infancy (PHHI).
If you would like to speak to other parents for helpful hints, just to chat or anything else contract the UK Support Group:
Julia Killengray: 01376 528569
Adrienne Burton: 020 8249 3887
There is an international email group with it’s own website designed by parents of HI children. Medical experts of HI have also written articles for this website.
www.sur1.org
To join the email group just visit the above website and follow on screen instructions. Members come from all over the world including, UK, USA, Canada, Australia and other European countries.
Quote from a parent:
“The email group is my lifesaver. I share my experiences and listen to others. I have learned a lot and been helped a great deal by others who have been there and done it! I now get enormous satisfaction helping new members through their hard times as I have now been there and done it myself”
In 2003, a doctor, nurse and two mothers established The Children’s Hyperinsulinism Fund – a charity to help children who suffer from this condition.
The fund will be used for desperately needed research into all aspects of HI from medication, cause including genetics, feeding issues, digestive enzymes and their control, diagnosis and protocol along with many other areas.
All members of the UK Support Group have an input as to what type of research is undertaken.